How do I explain lupus to my family?

A good way to start to explain lupus is to make clear what lupus is not:
  1. Lupus is not contagious. You cannot "catch" lupus from someone or "give" lupus to someone.
  2. Lupus is not like or related to HIV (Human Immune Deficiency Virus) or AIDS (Acquired Immune Deficiency Syndrome). ...
  3. Lupus is not like or related to cancer.

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How do you explain what lupus feels like?

Many people described the pain of lupus as similar to having the flu. This means having chills and bone-weary aches throughout your entire body. The pain can be numbing and leave you feeling drained of all energy. “I explain it to others as feeling like the flu: achy joints, muscles, bones.”

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What is lupus in a nutshell?

Systemic lupus erythematosus (SLE), is the most common type of lupus. SLE is an autoimmune disease in which the immune system attacks its own tissues, causing widespread inflammation and tissue damage in the affected organs. It can affect the joints, skin, brain, lungs, kidneys, and blood vessels.

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What is the sister condition to lupus?

Sjogren's syndrome is a relatively common disease, although often under-diagnosed. Sjogren's syndrome can occur alone or in association with other autoimmune diseases, most commonly lupus and rheumatoid arthritis (RA).

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Should you tell people you have lupus?

It's important for family and friends to understand lupus so they know how they can help. But since lupus has so many different symptoms that come and go — which may range from manageable to life-threatening — it can be hard to describe. Explain that lupus is unpredictable. Symptoms can appear, disappear, and change.

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Understanding Lupus: Activist Spreads Awareness, Breaks Stigmas

45 related questions found

Should I tell my family I have lupus?

It is not necessary to share all of the details about lupus. But you will want to describe the possible symptoms of lupus and your symptoms in particular. Explain your treatments, as well as the fact that lupus can develop in men and women, teens, and children.

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Is lupus a big deal?

Lupus is a lifelong disease that can affect many parts of your life. But, many women with lupus live long, healthy lives. You can take steps to control your symptoms, prevent lupus flares, and cope with the challenges of lupus.

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Who is most likely to inherit lupus?

Although lupus can develop in people with no family history of lupus, there are often other autoimmune diseases in some family members. People of African, Asian, Pacific Island, Hispanic/Latino, Native American or Native Hawaiian descent have a greater risk of developing lupus, which may be related to genes.

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What side of the family does lupus come from?

As such, researchers may refer to lupus as a polygenic disease, meaning many different genes contribute toward the development of the condition. However, no single gene or group of genes causes lupus. While lupus may appear in certain families, most cases are sporadic. This means that no other known relative has lupus.

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What does lupus turn into?

Lupus causes inflammation throughout the body, which can cause problems in organs, including: Kidney damage that can lead to changes in kidney function, including kidney failure. This is called lupus nephritis. Seizures and memory problems due to changes in the brain and central nervous system.

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What are three triggers of lupus?

Common triggers include:
  • Overwork and not enough rest.
  • Being out in the sun or having close exposure to fluorescent or halogen light.
  • Infection.
  • Injury.
  • Stopping your lupus medicines.
  • Other types of medicines.

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What is the flower for lupus?

The Lupine is named after “Lupus,” the Latin word for wolf!

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Why is lupus so bad?

Because lupus is an autoimmune disease, it causes your body to attack itself. This can lead to organ damage over time. Parts of the body that can be impacted by lupus can include the skin, blood, joints, kidneys, brain, heart and lungs. Skin: Skin problems are a common feature of lupus.

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What should you not do if you have lupus?

5 Things to Avoid if You Have Lupus
  1. (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  2. (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  3. (3) Garlic. ...
  4. (4) Alfalfa Sprouts. ...
  5. (5) Echinacea.

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What hurts when you have lupus?

You may experience pain and stiffness, with or without swelling. This affects most people with lupus. Common areas for muscle pain and swelling include the neck, thighs, shoulders, and upper arms.

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What is lupus hair?

Hair loss is common in people living with lupus. The autoimmune disease causes body-wide inflammation that attacks the joints and skin, including the scalp. This can result in hair loss (alopecia ). Lupus-related hair loss can occur slowly, causing hair to become noticeably thinner gradually.

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Why did I get lupus?

Sunlight, stress, smoking, certain medicines, and viruses may trigger symptoms in people who are most likely to get lupus due to their genes. Hormones such as estrogen. Lupus is more common in women during their childbearing years when estrogen levels are highest. Problems with the immune system.

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What are the four stages of lupus?

Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple organ systems. There are four main types of lupus: neonatal, discoid, drug-induced, and systemic lupus erythematosus (SLE), the type that affects the majority of patients.

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How many times is it actually lupus in house?

Fans of House will know that the first and only time lupus made its appearance in the show was in episode 8 of season 4, leading House to exclaim, “It's finally lupus!”

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What blood type is prone to lupus?

Since antigens play a major role in how lupus works, studies checked if the blood groups with antigens (A, B, and AB) are a risk factor. One study⁸ demonstrated that people with B+ blood type might have a higher risk of developing lupus.

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Does lupus get worse with age?

With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.

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Are you born with lupus or does it develop?

Lupus can develop in people with no family history of it, but there are likely to be other autoimmune diseases in some family members.

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What is daily life like with lupus?

Stress, joint pain, and fatigue are common lupus symptoms. While rest is essential, moving your body regularly releases “feel good” hormones called endorphins. This can boost your mood and keep your stressors in check. Physical exercise can also lessen joint pain and prevent stiffness in the body.

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What not to say to someone with lupus?

Here are 10 things to never say to someone with lupus or any other chronic disease.
  • But you look so good. ...
  • You are too young to have lupus. ...
  • I'm sure things will get better. ...
  • Do you really need to take all these meds? ...
  • Have you tried this diet? ...
  • Have you tried lupus meditation? ...
  • You need to get more exercise.

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What is the average lifespan for lupus?

With close follow-up and treatment, 80-90% of people with lupus can expect to live a normal life span. It is true that medical science has not yet developed a method for curing lupus, and some people do die from the disease. However, for the majority of people living with the disease today, it will not be fatal.

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