Tie it all together for them by explaining “lupus is the reason my joints hurt,” or “lupus is the reason my skin has a rash,” says Dr. Petri. Carly helps people understand how the disease affects her by saying, “If you've ever had the flu, you know how your body aches all over, that's how I feel almost every day.
Work together with your loved one to better understand the disease. Lupus is a big adjustment, make time to talk about how this transition is affecting you. Support your loved one's care management by keeping good records. Document your loved one's medications, dietary restrictions and other daily caregiving tasks.
Sjogren's syndrome is a relatively common disease, although often under-diagnosed. Sjogren's syndrome can occur alone or in association with other autoimmune diseases, most commonly lupus and rheumatoid arthritis (RA).
It is not necessary to share all of the details about lupus. But you will want to describe the possible symptoms of lupus and your symptoms in particular. Explain your treatments, as well as the fact that lupus can develop in men and women, teens, and children.
Although lupus can develop in people with no family history of lupus, there are often other autoimmune diseases in some family members. People of African, Asian, Pacific Island, Hispanic/Latino, Native American or Native Hawaiian descent have a greater risk of developing lupus, which may be related to genes.
Lupus causes inflammation throughout the body, which can cause problems in organs, including: Kidney damage that can lead to changes in kidney function, including kidney failure. This is called lupus nephritis. Seizures and memory problems due to changes in the brain and central nervous system.
It's likely that lupus results from a combination of your genetics and your environment. It appears that people with an inherited predisposition for lupus may develop the disease when they come into contact with something in the environment that can trigger lupus. The cause of lupus in most cases, however, is unknown.
Lupus is a chronic, autoimmune disease that can damage any part of the body. Lupus is more common among women of childbearing age (ages 15 to 44 years). Lupus can affect almost any organ in your body, which can lead to a variety of different symptoms.
Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.
According to the Lupus Research Alliance, about half of all people with lupus experience cognitive difficulties with thought processes. Around 1 in 5 people experience headaches, memory loss, mood swings, and stroke. Blood clots might also develop. These might also lead to dangerous complications, such as stroke.
Lupus is a lifelong disease that can affect many parts of your life. But, many women with lupus live long, healthy lives. You can take steps to control your symptoms, prevent lupus flares, and cope with the challenges of lupus.
Mood swings and personality changes.
People with lupus may experience unpredictable changes in moods and personality traits. This can include feelings of anger and irritability. These may be related to the disease process or, in some cases, the use of corticosteroid medications.
Lupus can be difficult to diagnose because its symptoms vary so widely. People with mild lupus may have just a few symptoms, such as skin rashes or achy joints. In other cases, lupus can harm essential organs, including the kidneys and brain. “Diagnosis is one of the biggest challenges patients can face,” says Gourley.
Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple organ systems. There are four main types of lupus: neonatal, discoid, drug-induced, and systemic lupus erythematosus (SLE), the type that affects the majority of patients.
With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.
Muscle and joint pain.
You may experience pain and stiffness, with or without swelling. This affects most people with lupus. Common areas for muscle pain and swelling include the neck, thighs, shoulders, and upper arms.
Symptoms and diagnosis occur most often between the ages of 15 and 44. Symptoms of lupus will occur before age 18 in only 15 percent of the people who are later diagnosed with the disease.
Hair loss is common in people living with lupus. The autoimmune disease causes body-wide inflammation that attacks the joints and skin, including the scalp. This can result in hair loss (alopecia ). Lupus-related hair loss can occur slowly, causing hair to become noticeably thinner gradually.
While stress does not directly cause lupus, environmental factors like stress play a role in the onset of the illness for individuals who are already predisposed.
For some people, living with and managing lupus can cause weight gain. Weight gain may also lead to worsening lupus symptoms and complications associated with obesity. Some potential causes of weight gain that relate to lupus may include: being a side effect of medications such as corticosteroids.