It's important for family and friends to understand lupus so they know how they can help. But since lupus has so many different symptoms that come and go — which may range from manageable to life-threatening — it can be hard to describe. Explain that lupus is unpredictable. Symptoms can appear, disappear, and change.
Due to lupus often being invisible, it may be difficult for your partner to understand what you are experiencing. It is possible that they may doubt your illness, believing it is all in your head. This can be extremely painful and frustrating, causing anger and resentment.
Make It Easy for Others to Understand
Start by explaining that “lupus is a disease where the immune system makes a mistake,” says Dr. Petri. “Instead of fighting infection the way it should, the immune system starts to attack normal tissues in the body.”
You may be concerned that telling your employer about a lupus diagnosis might call into question your effectiveness in your job, or might somehow decrease your value as an employee. Legally, you are not required to disclose your health condition to your employer.
Is Autoimmune disease a disability that qualifies for financial help in Australia? Autoimmune disease is a disability that qualifies for financial help in Australia. Help is available through the National Disability Insurance Scheme (NDIS) which is administered by Centrelink.
How much it will impact your life will depend on the severity, which can range from mild to severe. Lupus is also a hidden disability in many ways as often the symptoms are not obvious. Extreme Fatigue / tiredness.
Lupus is a lifelong disease that can affect many parts of your life. But, many people with lupus live long, healthy lives. You can take steps to control your symptoms, prevent lupus flares, and cope with the challenges of lupus.
Remember that rest is also needed to restore energy. Lupus patients will want to work towards a healthy tiredness where subsequent rest or sleep recharges the batteries, and more recovery obtained in this way should help to minimise lupus tiredness.
With close follow-up and treatment, 80-90% of people with lupus can expect to live a normal life span. It is true that medical science has not yet developed a method for curing lupus, and some people do die from the disease. However, for the majority of people living with the disease today, it will not be fatal.
Lupus can cause serious kidney damage, and kidney failure is one of the leading causes of death among people with lupus. Brain and central nervous system. If your brain is affected by lupus, you may experience headaches, dizziness, behavior changes, vision problems, and even strokes or seizures.
Lupus nephritis tends to develop within 5 years of the appearance of initial lupus symptoms. The condition affects about 40% of people who have SLE and can lead to end-stage kidney disease (ESKD) in 22% of patients over a period of 15 years.
Fatigue is one of the most common lupus symptoms that may affect your day-to-day quality of life. Lack of sleep can cause inflammation in the body and make your pain, stress, or fatigue worse. To keep your energy levels in check, make sure you get 7 to 9 hours of restful sleep each night.
However, the majority of people with lupus can expect a normal or near-normal life expectancy. Research has shown that many people with a lupus diagnosis have been living with the disease for up to 40 years.
The unpredictability of lupus adds another layer of difficulty. All of this may be why only half of the adults with lupus work. One study found that 5 years after diagnosis, 15 percent had stopped working. By 10, 15, and 20 years after diagnosis, roughly 33 percent, 50 percent, and 66 percent had stopped working.
Many people with lupus experience fatigue, or feeling tired throughout the day. For some people, fatigue can make it hard to do everyday activities like taking a shower, cooking dinner, or going to work. The good news is there are steps you can take to feel better.
The seriousness of SLE can range from mild to life-threatening. The disease should be treated by a doctor or a team of doctors who specialize in care of SLE patients. People with lupus that get proper medical care, preventive care, and education can significantly improve function and quality of life.
While you do not have to stop drinking altogether, limiting alcoholic beverages will ensure that your medications work as they should. Alcohol interferes with some medications, including popular non-steroidal anti-inflammatory drugs (NSAID) like ibuprofen and naproxen.
With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.
Joint pain is common in lupus, especially in the small joints of the hands and feet. The pain often moves from joint to joint. Joint pain, swelling and stiffness can be the main symptoms for some people with lupus. In most cases, lupus is unlikely to cause permanent damage or change the shape of joints.
Gender: Even though anyone can get lupus, it most often affects women. They're nine to ten times more likely than men to develop it. Age: Lupus can occur at any age, but most are diagnosed in their 20s and 30s. Race: Lupus is two to three times more common in African-American women than in Caucasian women.
“Not every patient with lupus has that degree of severity but when you have your immune system attacking your kidneys or your heart or your lungs, that can be life threatening.” At one point Williams lost 50 percent of her muscle mass and was unable to even move, confined to a wheelchair.