What is the age range for MSA?

The peak onset of MSA is between 55-60 years of age, with a range from 30 to over 90 years.

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What age can you get MSA?

Symptoms of multiple system atrophy (MSA) Symptoms of MSA usually start when someone is between 50 and 60 years of age, but they can begin at any time after 30. The symptoms are wide-ranging and include muscle control problems, similar to those of Parkinson's disease.

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Can you get MSA in your 20s?

Multiple system atrophy (MSA) is a disabling neurodegenerative condition with heterogeneous clinical presentations that typically begins in the sixth decade of life. The disease rarely manifests prior to age 40, and we simply do not know much about the clinical features of these young-onset patients.

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What is the age of onset for MSA C?

The cause of MSA-C in people with the sporadic form is not known. The disease slowly gets worse (is progressive). MSA-C is slightly more common in men than in women. The average age of onset is 54 years old.

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What is the criteria for MSA?

For a diagnosis of “probable MSA” a patient must have autonomic dysfunction, including otherwise unexplained urinary urgency, frequency, or incomplete emptying, erectile dysfunction in males, or orthostatic blood pressure drop by at least 30 mmHg systolic or 15 mmHg diastolic within 3 min of standing.

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What can trigger MSA?

The cause of MSA is unknown. The vast majority of cases are sporadic, meaning they occur at random. A distinguishing feature of MSA is the accumulation of the protein alpha-synuclein in glia, the cells that support nerve cells in the brain.

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Does MSA run in families?

Most cases of multiple system atrophy are sporadic, which means they occur in people with no history of the disorder in their family. Rarely, the condition has been reported to run in families; however, it usually does not have a clear pattern of inheritance.

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What are the stages of MSA?

In MSA there may be several stages -- alpha-synuclein accumulates in the oligodendroglial cells, then there is failure of mitochondrial function as well as loss of trophic factor support. Then the oligodendroglia degenerate, followed by microglia and astroglial activation.

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Do people with MSA get dementia?

Though dementia is not considered a common characteristic of MSA, cognitive impairment occurs in some patients in the form of loss of verbal memory and verbal fluency1.

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Can MSA go into remission?

The progression of MSA varies, but the condition does not go into remission. As the disorder progresses, daily activities become more difficult. Possible complications include: Breathing problems during sleep.

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What diseases mimic MSA?

Acquired
  • Whipple's disease.
  • Extrapontine myelinolysis.
  • Paraneoplastic cerebellar degeneration.
  • Alcoholic cerebellar degeneration.
  • Drug-induced cerebellar degeneration.
  • Gluten Ataxia.

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What can mimic MSA?

Polyglutamine (polyQ) diseases such as spinocerebellar ataxias (SCA1, SCA2, SCA3, SCA6, SCA17, DRPLA) and also late-onset Huntington disease (HD) represent the most frequent genetic misdiagnosis due to the considerable clinical overlap with MSA [5].

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Does MSA show up on MRI?

MRI is useful and indispensable in the diagnosis of MSA and also possibly for monitoring disease progression.

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What is the timeline of multiple system atrophy?

People typically live about 7 to 10 years after multiple system atrophy symptoms first appear. However, the survival rate with MSA varies widely. Death is often due to respiratory problems, infections or blood clots in the lungs (pulmonary embolus).

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How many people have MSA in Australia?

Around 3,000 people in Australia currently live with the rare parkinsonian condition called Multiple Systems Atrophy (MSA), which affects movement, breathing, blood pressure and other body functions.

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Is there pain with MSA?

PD and MSA patients are prone to pain with insufficient treatment.

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Does MSA show on brain scan?

Brain imaging scans, such as an MRI , can show signs that may suggest MSA and also help determine if there are other causes that may be contributing to your symptoms.

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How often is MSA misdiagnosed?

In this unselected referral autopsy series of patients with antemortem diagnoses of MSA, the diagnostic accuracy was about 62%, which is within the range of other autopsy series.

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What is the end of life for MSA patients?

Appetite reduces and weight loss is apparent. Communication becomes too effortful and breathing more bubbly or shallow. Dying is very rarely a dramatic event. In the majority of cases it is an increasing winding down of all bodily functions and everything stopping, death occurring in a peaceful and dignified manner.

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What are the red flags for MSA?

Red flags supporting the diagnosis of MSA include the following:
  • Orofacial dystonia.
  • Disproportionate antecollis.
  • Severe anterior flexion of the spine (camptocormia)
  • Severe lateral flexion of the spine (Pisa syndrome)
  • Contractures of hands and feet.
  • Inspiratory sighs.
  • Severe dysphonia.
  • Severe dysarthria.

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How do you care for someone with MSA?

Listen, listen, listen: Living with MSA can be very isolating. The family may be eager to talk about what they are going through so listening and showing empathy can be one of the most helpful things you can do. Or they may just want a light, fun evening with laughter. Pay attention to their cues and follow their lead.

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What are the odds of multiple system atrophy?

Multiple system atrophy is a rare condition. Experts estimate an average of 0.6 to 0.7 new cases per 100,000 people yearly. The estimated number of total cases is between 3.4 and 4.9 per 100,000 people.

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Does MSA affect the eyes?

Whilst MSA doesn't cause loss of sight, there are several symptoms that can occur. People living with MSA may display abnormal eye movements. Most commonly, this is a consequence of impaired or absent convergence, which is the ability to focus both eyes together. This may result in blurred or double vision.

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What is the life expectancy of someone with cerebellar atrophy?

In general, life expectancy is shorter than usual for Cerebellar Degenerative Ataxia patients. Many, however, may live into their 50s or even their 60s.

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Can MSA be misdiagnosed?

Its symptoms often mimic those of Parkinson's disease and ataxia. There is no cure, and many physicians are not familiar with the condition – meaning MSA is often misdiagnosed. However, symptoms can be managed, which is why it's important to be evaluated and treated by physicians who have experience dealing with MSA.

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