Blood clots are more common in people with lupus. They often happen in your legs (called deep venous thrombosis or DVT), in your lungs (called pulmonary embolism or PE), and sometimes in your brain (stroke). These clots may be tied to how your body makes things called antiphospholipid (APL) antibodies.
Lupus can cause serious kidney damage, and kidney failure is one of the leading causes of death among people with lupus. Brain and central nervous system. If your brain is affected by lupus, you may experience headaches, dizziness, behavior changes, vision problems, and even strokes or seizures.
SLE is the most common and most serious type of lupus. Other types of lupus include the following: Cutaneous lupus (skin lupus) is lupus that affects the skin in the form of a rash or lesions. This type of lupus can occur on any part of the body, but usually appears where the skin is exposed to sunlight.
Kidneys About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. Lungs About 50% of people with SLE will experience lung involvement during the course of their disease.
Lupus causes inflammation throughout the body, which can cause problems in organs, including: Kidney damage that can lead to changes in kidney function, including kidney failure. This is called lupus nephritis. Seizures and memory problems due to changes in the brain and central nervous system.
You should also be aware of symptoms that require that you see a doctor immediately. These include: Severe abdominal pain. Chest pain or shortness of breath.
Many lupus patients aren't able to do intensive physical work, like waitressing or working in a grocery store. Jobs that involve standing for long periods, like working a cash register, greeting customers, or being a hostess at a restaurant, can be physically tiring as well as rough on the joints.
With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.
Common triggers include:
Being out in the sun or having close exposure to fluorescent or halogen light. Infection. Injury. Stopping your lupus medicines.
Class 4, or diffuse lupus nephritis
Class 4 involves damage to more than half of the glomerulus. A person will have high blood pressure. They may require dialysis as kidney function begins to worsen.
With close follow-up and treatment, 80-90% of people with lupus can expect to live a normal life span. It is true that medical science has not yet developed a method for curing lupus, and some people do die from the disease. However, for the majority of people living with the disease today, it will not be fatal.
Cardiovascular disease, not lupus itself, is the number one cause of death in people with lupus. (It is actually the number one cause of death around the world.) The number two cause of death for people with lupus is infection.
And UV light not only seems to trigger lupus, it also appears to make symptoms worse. When people with lupus are exposed to UV rays, they tend to get joint pain and feel fatigued. Infections. Usually when you get sick, your immune system fights off the virus and then stops.
People with SLE have episodes in which the condition gets worse (exacerbations) and other times when it gets better (remissions). Overall, SLE gradually gets worse over time, and damage to the major organs of the body can be life-threatening.
Stress, joint pain, and fatigue are common lupus symptoms. While rest is essential, moving your body regularly releases “feel good” hormones called endorphins. This can boost your mood and keep your stressors in check. Physical exercise can also lessen joint pain and prevent stiffness in the body.
The sun is the main source of ultraviolet light and is enemy no. 1 for patients with lupus, because it can trigger the disease or trigger flares at any time in its development.
Many people with lupus are unusually sensitive to the sun and other forms of ultraviolet light. A day at the beach may trigger a skin rash in areas exposed to sunlight and may worsen other lupus symptoms. Certain medications can make people with lupus even more sensitive to UV light.
The bottom line
Focus on self-care, and lean on your support system to get you through it. To prevent lupus flares, the best thing you can do is take your medications as directed. Diet, exercise, rest, and mental wellness are also important.
Eat an autoimmune-friendly diet
Because lupus is an inflammatory disease, focus on eating an anti-inflammatory diet, such as the Mediterranean diet or the DASH Diet. Providing your body with essential vitamins, minerals, antioxidants, and other nutrients will help it fight back against flare-ups.
Lupus may get worse very quickly. There is no way to tell when a flare will happen or how bad it will be. When you have a lupus flare, you may have new symptoms as well as symptoms you have had in the past. Learn your body's signs of a flare, such as joint pain, a rash, a fever, or being more tired.
Lupus nephritis tends to develop within 5 years of the appearance of initial lupus symptoms. The condition affects about 40% of people who have SLE and can lead to end-stage kidney disease (ESKD) in 22% of patients over a period of 15 years.
Systemic lupus erythematosus is a chronic autoimmune disorder that causes a wide range of mild to life-threatening conditions that require hospitalization and critical care.